The reason for the delay of information has been due to our stay in the PICU. They did not allow cell phones or computers in the unit, for good reason. We have moved to the 12th floor, specifically 12 East, Room 9. We are fortunate to have one of the few private rooms. We are seeing some improvement in Gracie. She has kept down a popsicle and a few sips of apple juice. We have been told that the sickness and irritability that she is feeling is because of the pain medicine, Fentenal (sp?). Once she is able to transition to a milder medicine, which will hopefully be tomorrow, she should feel better. Gracie complains of her legs itching and asks us to scratch them as hard as we can. We assume this sensation is the tingling inside of her legs from her nerves being cut and that she just thinks they are itching on the outside. Gracie's pain comes and goes right now. They come to shift her every 4 - 6 hours. This is hard on her and she is hard to calm down afterwards. I can imagine that getting her into a chair will be difficult as well. That is our goal over the next day or two. The physical therapist will be assisting us.
We are able to decorate the room where Gracie is now. We have many e-cards and greeting cards to hang on her wall. Please continue to send the e-cards; we enjoy sharing them with her. She has also received balloons and stuffed animals that have raised her spirits. In fact, when the bear and balloons were delivered today from my 2nd grade class Gracie said, "Awh, tell them that I love them."
If tonight is anything like last night, we will not be answering the hospital telephone. If you need to reach one of us, please call our cell phones instead. When Gracie is sleeping, she is most comfortable. Thank you for helping us with this.
We are able to decorate the room where Gracie is now. We have many e-cards and greeting cards to hang on her wall. Please continue to send the e-cards; we enjoy sharing them with her. She has also received balloons and stuffed animals that have raised her spirits. In fact, when the bear and balloons were delivered today from my 2nd grade class Gracie said, "Awh, tell them that I love them."
If tonight is anything like last night, we will not be answering the hospital telephone. If you need to reach one of us, please call our cell phones instead. When Gracie is sleeping, she is most comfortable. Thank you for helping us with this.
3 comments:
Thank you so much for sending us this blog link. I cannot tell you how often we think about Gracie and your family since finding out about the surgery. We/Cole miss her at school and cannot wait until she returns home. We continue to pray for her rest and painless recovery. Give her a big hug from her buddy Cole!
We were glad to see that the surgery went well. We are thinking of all of you. Hopefully things will get easier with each day that goes by. Looking forward to seeing you all back in Nashville.
Love,
M, J and Z
So glad to hear that you have a private room. Hopefully, that will help little Grace rest better over the next few days. You guys hang in there and tell Gracie that Cal misses her so much! He asks about her all the time. I'm very impressed with and proud of Gracie's parents. You guys are amazing.(Jenna)
Post a Comment